I woke in a lot of pain this morning. It\u2019s one of those mornings that happens once in a while with me that no doctor has ever been able to explain. When it happens, I\u2019m in so much pain I\u2019m literally trembling, my hands shaking, unable to stand or move or even really think. Those who have seen me in this condition say my speech is also slurred during this time, but it\u2019s hard for me to know, because I can\u2019t even think when I\u2019m like that. I can\u2019t get to a doctor when I\u2019m like that either, because I never know what\u2019s bringing it on, when it will happen or how long it will last. Even if I could somehow get my brain to work during those times, I\u2019d have no ability to get up, get dressed, call a doctor, get an immediate appointment and then get to the office all before the pain either goes away again\u2013and that\u2019s assuming I can get to the doc the same day, a rare occurrence, if if could even happen at all.<\/p>\n
And then what? So the doctor sees me like that, but they schedule testing, and it\u2019s not like I can make it happen on the spur of the moment so that I\u2019m in a flareup during the test.<\/p>\n
Sigh.<\/span><\/p>\n It\u2019s tough. It\u2019s tough never knowing what the day will bring when I open my eyes. It\u2019s tough never being able to plan for anything, because of that one morning I could wake up and not be able to even move or think. It\u2019s tough when people in your life don\u2019t understand, but even worse when people through work or who aren\u2019t as close to you don\u2019t understand, because they don\u2019t know what you go through.<\/p>\n So what do I do when this happens? I don\u2019t do all that much but lie in bed and moan and sleep. But if a family member gives me a pain pill and brings me my morning meds, I\u2019ll take all of them and wait for the meds to kick in.<\/p>\n Eventually, and it takes about an hour for this to happen, I\u2019ll feel this fuzzy feeling starting in the back of my head, and then, like dropping a sheer veil over my head from above. It touches the top of my head and then slowly flows down and gently covers me in a comforting haze. I\u2019m so grateful for the relief of pain that I don\u2019t even mind the fuzzy brain that comes with it, at least, at first.<\/p>\n And I know any day that starts this way is not going to be a good one for the entire rest of the day. I will fight off the pain all day, and I will stay in a foggy haze all day too. Sometimes, this happens just one day and the next day I \u2018ll be fine. Other times, it\u2019ll happen two or three days in a row, and then just go away like it had never happened.<\/p>\n I don\u2019t know. I\u2019ve mentioned it to just about every doctor I\u2019ve ever gone to, and for some reason, none of them seem interested in it. I\u2019m interested in it. It hurts. Bad. It\u2019s scary when it happens, for both me and my family.<\/p>\n I ran into a website the other day that is crowdsourcing medical diagnosing. I\u2019m curious about it. Might put this up on there and see what it says\u2026 see if anyone else can come up with any ideas.<\/p>\n In the meantime, I\u2019m going to start writing on this blog again, sort of like a personal journal. You guys can read along if you want to.<\/p>\n Love and stuff,<\/p>\n Michy<\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" I woke in a lot of pain this morning. It\u2019s one of those mornings that happens once in a while with me that no doctor has ever been able to explain. When it happens, I\u2019m in so much pain I\u2019m literally trembling, my hands shaking, unable to stand or move or even really think. Those […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[8],"tags":[],"class_list":["post-673","post","type-post","status-publish","format-standard","hentry","category-health"],"yoast_head":"\n