{"id":48,"date":"2019-11-24T23:47:47","date_gmt":"2019-11-24T23:47:47","guid":{"rendered":"http:\/\/michelledevon.com\/?p=48"},"modified":"2019-11-24T23:47:47","modified_gmt":"2019-11-24T23:47:47","slug":"the-value-of-a-second-third-or-fourth-opinion","status":"publish","type":"post","link":"https:\/\/michelledevon.com\/index.php\/2019\/11\/24\/the-value-of-a-second-third-or-fourth-opinion\/","title":{"rendered":"The Value of a Second, Third or Fourth Opinion"},"content":{"rendered":"\n

Posted by\u00a0Michy<\/strong>\u00a0on\u00a0Jan 20, 2016<\/strong>\u00a0in\u00a0Health<\/a><\/strong>\u00a0|\u00a06 comments<\/a><\/p>\n\n\n\n

\"logo\"<\/figure>\n\n\n\n

So after meeting with the cardiologist at Baylor, I then met with the pulmonologist I\u2019d been waiting for over a year to meet with. And she spent less than five minutes with me and put me into the hospital straight from clinic: Do not pass go, do not go home and pack a bag, go straight across the skybridge to the hospital across the street and check in.<\/p>\n\n\n\n

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\"Untitled<\/a><\/figure>\n<\/div>\n\n\n\n

It was a whirlwind. Crazy. I was scared, because these things don\u2019t happen and I don\u2019t know the hospitals there or the doctors or anything. So they put me in the hospital at Methodist Houston. I had to wait forever for a room and in the meantime, I ran out of oxygen in my tank. They brought me a tank to supplement until I got a a room where I could hook up to the room oxygen. Silly me, I dropped the tank on my foot in the room, and I broke my foot. Seriously, fractured a bone in my foot while at the hospital. They even took me down to x-ray and everything. It was hilarious. Well, I guess you had to be there to laugh at it. The bruising was amazing! See?<\/p>\n\n\n\n

But that all said, I have a lot to get off my chest, so stick with me, \u2019cause this is going to get long, if I know me at all (and I do, so it\u2019s going to get long):<\/p>\n\n\n\n

THE VALUE OF A SECOND OPINION<\/strong><\/p>\n\n\n\n

Look, it flat-out comes down to this: If you aren\u2019t happy with your healthcare, you have the right to go somewhere else. More than that, you owe it to yourself. Even if you are on Medicare or Medicaid, you are allowed, by law, a second evaluation and opinion. They MUST pay for it. Find a provider that accepts your insurance and get a second opinion.<\/p>\n\n\n\n

Being the codependent that I am, I don\u2019t give up easily on any relationship, and that included a doctor\/patient relationship\u2013which SHOULD be a strong bond relationship of trust. The doctor should trust you to do what he or she prescribes and do it right and you trust the doctor to treat you in the best interests of your health and well being and you trust also that he or she knows what they are doing and HOW to treat you properly too. That IS what you pay them for, after all.<\/p>\n\n\n\n

I can write volumes about how our health system is so fucked up it\u2019s unbelievable, and I don\u2019t use those f-bombs lightly. It\u2019s unreal. We pay doctors, whether they do anything or not. I can\u2019t tell you the number of times we\u2019ve gone into a doctor\u2019s office, spent less than 15 minutes (sometimes less than 5), paid an average cost of $300 bucks, just to be told that my labwork looks fine, there\u2019s nothing they can do for me.<\/p>\n\n\n\n

Seriously. I can read labwork. The new laws even allow me, if I\u2019m willing to pay for it myself, to do almost any labwork on myself that I want. I can take blood tests and see the levels all come back in range, and I don\u2019t have to pay some guy for that privilege. A doctor is a lot more than that\u2013or he or she should be, anyway. A doctor should look at your symptoms. He should listen to you when you\u2019re telling him why you are there. He should make connections between labwork that might be at the right level, but is a little bit off and sort of leans toward matching something you\u2019ve told him about yourself. He should coordinate with your primary care doctor and other specialists to ensure that treatment is consistent and not at odds with any other treatments. He should know your medications and verify that none of your medications will interfere with any of your other medications he prescribes you and that none of them will cause or worsen any of the symptoms or conditions you already have. There is so much that she or he should do, and you can\u2019t do that in 5 minutes and a blood test. And you sure as shit don\u2019t deserve $1200-1800 bucks PER HOUR for doing that.<\/p>\n\n\n\n

No way. No how. No, sir!<\/p>\n\n\n\n

I can\u2019t tell you how many offices I sat in where this is the scenario and how many times I left, staring straight ahead, blinking rapidly, numb and angry and disillusioned, one more time.<\/p>\n\n\n\n

So when I found one doctor who sort of tried to do something different, I jumped at him and stuck like glue and refused to let go.<\/p>\n\n\n\n

And he almost killed me.<\/p>\n\n\n\n

Seriously. I believe with all my heart if I\u2019d stayed with him, I would have died. If I\u2019d listened to him and done what he wanted me to do, I would have died. But I didn\u2019t know what else to do. I didn\u2019t have the strength to start over again.<\/p>\n\n\n\n

My salvation came in the form of an appointment with a doctor I\u2019d been trying for over a year to get an appointment with\u2013a specialist in CTEPH, a doctor who I just learned is building a CTEPH center to do PTE surgery here locally in the Houston area\u2013and with one appointment, everything I\u2019d been wanting for the past four years, everything I\u2019d been asking the other doctor for\u2026 everything. She gave it all to me, without even having to ask.<\/p>\n\n\n\n

Of course, it resulted in a 12-day hospital stay, but I know I needed it. I probably still need to be in the hospital, but like she said, they can\u2019t keep me in there forever, and I have a life I need to try to live here at home, but she\u2019s given me hope.<\/p>\n\n\n\n

For the first time in four years, I have a lot of hope.<\/p>\n\n\n\n

And if I had stayed in the bad relationship I had with this other doctor\u2013who wasn\u2019t a BAD doctor, per se, but it WAS a bad relationship\u2013I\u2019d have never found this help and I wouldn\u2019t be improving.<\/p>\n\n\n\n

And I am improving. I have a new primary care doctor who truly coordinates my care and sends me emails asking me how I\u2019m feeling every so often, just to check on me even when I am not coming to see her. She also does a lot of work via email and phone, which saves me trips to the office and saves me co-pays. Sweet. She cares about me as a patient, not me as a potential billing client. My pulmonologist is straightforward, to the point, direct\u2013almost abruptly and rudely so, and I love her. She\u2019s honest with me. I will always know where I stand with her, and that helps me build trust.<\/p>\n\n\n\n

After that absolutely horrible procedures I had at the other hospital, I had three major procedures at the new hospital while I was there and all three went perfectly smooth. There was one small glitch with an IV that blew so I wasn\u2019t getting any sedating medication and my blood pressure was super high because I was super nervous, but the procedures themselves were so easy. They went so quickly too. It was amazing.<\/p>\n\n\n\n

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\"20141001_134237\"<\/a><\/figure>\n<\/div>\n\n\n\n

I think of all the fear. I think of the tears I cried. I think of the failed right-heart cath at the other hospital and how the doctor had BLAMED me for it, saying it was my fault he couldn\u2019t advance the line. But then I saw the bruises all over my chest when he did it, and then not a single bruise on me when the other docs did it. I know now it wasn\u2019t my fault. THEY screwed up, not me.<\/p>\n\n\n\n

My mother asked me, \u201cDo you wonder now why you stayed with that other doctor for so long?\u201d<\/p>\n\n\n\n

And I do wonder why. It\u2019s sort of like when you break up with someone and you realize the relationship was over WAY before you actually ended it, and you\u2019re relieved when it\u2019s finally over.<\/p>\n\n\n\n

I\u2019m relieved.<\/p>\n\n\n\n

But unlike a romantic relationship, I absolutely cheated on my doctor. I went and got that second opinion BEFORE I left his office. I sneaked around, got my own records and took them instead of doing records requests, and I read through them and saw all the things that were said about me, and I took what the doctor needed to see, and left that other stuff out.<\/p>\n\n\n\n

And now, I need to do one more thing before I move on with my life and put this part of it in the past\u2026<\/p>\n\n\n\n

I need to break up with my doctor.<\/p>\n\n\n\n

And much like many relationships end up in court, this one just very well might end up there too, because I\u2019m seriously considering legal action. I\u2019m not a sue-happy person, but I think I\u2019m more than justified, and this new doctor is helping me feel well enough that I just might have the strength to fight for myself.<\/p>\n\n\n\n

And thankfully, gratefully, *I* will be fighting for myself instead of my family fighting a wrongful death lawsuit, which is very well where this could have ended up.<\/p>\n\n\n\n

I\u2019ll share more on this as I go along, as I\u2019m hoping to write and update here more regularly now. I\u2019m no longer blocked on writing here because I finally took a stand and moved away from the numbness, the stall, the anger, the fear\u2026 I\u2019m moving in a positive direction again.<\/p>\n\n\n\n

But I want you all to really take a lesson from this: If something doesn\u2019t feel right about your doctor, get another opinion. Go to another doctor. Yes, that might mean you have to see 5, 7, 10 doctors. See as many as it takes to find that one that believes you, that sees what you see and is willing to work toward a solution with you. Don\u2019t settle for one that only makes your tests on a piece of paper look good\u2013find one that helps you FEEL better. You are more than a piece of paper. You are more than a patient number. You are more than a patient payment.<\/p>\n\n\n\n

Keep looking until you find a doctor who is willing to value your life as much as you do.<\/p>\n\n\n\n

And just because your doctor was good in the beginning doesn\u2019t mean you\u2019re obligated to stay if things change or you feel his treatment isn\u2019t aggressive enough or proper protocol or you want to try something that he doesn\u2019t, etc. Changing doctors is expected. It\u2019s not personal. It\u2019s your life. You have that right.<\/p>\n\n\n\n

You deserve the best care you can possibly find. Keep looking until you find it.<\/p>\n\n\n\n

I\u2019m glad I did.<\/p>\n\n\n\n

Love and stuff,<\/p>\n\n\n\n

Michy<\/p>\n","protected":false},"excerpt":{"rendered":"

Posted by\u00a0Michy\u00a0on\u00a0Jan 20, 2016\u00a0in\u00a0Health\u00a0|\u00a06 comments So after meeting with the cardiologist at Baylor, I then met with the pulmonologist I\u2019d been waiting for over a year to meet with. 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