A writer and full-time professional dreamer…
This week, I met with a new cardiologist at Baylor. I love the whole Baylor setup so much better than where I was before. It was really nice. Clean, beautiful, gorgeous offices with comfortable multiple sized chairs. The offices are nice and well kept. The tables are comfortable. The computers and equipment are new and […]
Over a decade and many more years ago, I was in an on-again-off-again tumultuous relationship with a man, that I would now hardly call a relationship. At the time, he and I were driving in a truck from Dallas back to my home at the time, which was about a 6-hour drive. I was wearing […]
I give up. I quit. I’m done. Why try? Why even fight the system? In the end, we always lose anyway, right? So why go through the aggravation to even bother? The difference is you either die broke and sick now or you die broke and sick a couple of years later… sigh. I probably […]
So I was going through my medical files, my records from the old hospital that I’m sending to the new doctor to evaluate to see if she will take me into her service. While going through them, I found some diagnoses that no one had ever told me. One of those diagnoses turned out to […]
One of the worst parts of CTEPH and CHF together is the swelling and fluid retention. The one single thing I can do that makes me feel better is to keep the fluid down. I do this by taking high-doses of diuretics and restricting my fluid t 1 1/2 to 2 liters of total fluid […]
I have some lab tests I’m supposed to get done. My doctor faxed the lab requests to Labcorp almost a month ago now. I’ve made three different appointments to go, and somehow, I’ve missed every one of them. They are testing me for paraneoplastic syndrome, as associated with a slow-growing type of cancer or tumor. […]
I want to introduce you to an online friend of mine. It might be better to call her a PHriend, but many of you won’t understand that. PH stands for the pulmonary hypertension that is part of the CTEPH that I have. It’s a cute way our support group calls each other… we’re PH-friends–phriends. It’s […]
For those of you who learned about it in college, or who are avid fans of the Big Bang Theory (love that show!), you know about Schrodinger’s cat. It’s basically about how, when you have this cat inside a box, that until you open the box, the cat exists in two different states at the […]
Ugh! So the other day, when I said I wish I had cancer, I was joking, universe. I did NOT mean for you to take me seriously. I was making a metaphorical comparison to cancer and the rare condition known as CTEPH. It wasn’t a request I was sending out to the universe that I have both. […]
I come here nearly every day to write something and almost never end up posting anything. Sometimes, I write for hours and nothing I say is what I want to say so I don’t post it. I feel I’m better for having written it. I guess I needed to get it out. But it’s not […]
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