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How to Know When to Sue for Medical Malpractice

April 17, 2016
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I’m in a quandry. Ya’ll know how I sort of spiraled into a depression a few months ago? And I’ve been struggling to get out of it. Well, I’m mostly on the other side of the fence and I’m starting to feel and be me again, and that’s fantastic. But now I have to face […]

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It’s Been a Long Time

March 2, 2016
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I will be doing an update this week. It’s been hard to write here, because… my emotions have all been a jumble. I think I’ve decided to consult an attorney about some of the things that happened to me medically at one of the facilities I went to, so I can’t talk about a lot […]

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PRESS RELEASE: Twelve Moments: Experiencing Spiritual and Faith Traditions

January 15, 2016
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Chajes 2663Discover the Jewish Mystical Tradition of Kabbalah at Rothko Chapel HOUSTON – Jan. 15, 2016 – Explore the mystery of Kabbalah at the Rothko Chapel. The Rothko Chapel is continuing its series, “Twelve Moments: Experiencing Spiritual and Faith Traditions,” with a look at Jewish mystical traditions, scheduled for noon on Wednesday, Feb. 3. A donation of […]

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CTEPH, PH, Whatever–Does this change everything?

December 23, 2015
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So the last doctor’s appointment with the pulmonologist was an interesting one. He took plenty of time to answer several of my questions. I asked about the last V/Q scan, and I’m due for another in February–this is the gamma radiation scan that makes me radioactive for up to three days. It’s cool–they give me […]

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NEWS from the LIBRARY of CONGRESS

October 6, 2015
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October 6, 2015 Contact: Guy Lamolinara, Library of Congress (202) 707-9217, glam@loc.gov Contact: Stephen Siwinski, Texas Center for the Book (512) 463-5514, ssiwinski@tsl.texas.gov Public contact: Center for the Book (202) 707-5221; cfbook@loc.gov Texas Center for the Book Has New Home at State Library and Archives The Library of Congress Center for the Book and the Texas State Library […]

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New Hospital, New Clinic, New Outlook

August 29, 2015
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This week, I met with a new cardiologist at Baylor. I love the whole Baylor setup so much better than where I was before. It was really nice. Clean, beautiful, gorgeous offices with comfortable multiple sized chairs. The offices are nice and well kept. The tables are comfortable. The computers and equipment are new and […]

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Braless, Barefoot and Bare

July 14, 2015
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Over a decade and many more years ago, I was in an on-again-off-again tumultuous relationship with a man, that I would now hardly call a relationship. At the time, he and I were driving in a truck from Dallas back to my home at the time, which was about a 6-hour drive. I was wearing […]

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The System Finally Broke Me

July 6, 2015
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I give up. I quit. I’m done. Why try? Why even fight the system? In the end, we always lose anyway, right? So why go through the aggravation to even bother? The difference is you either die broke and sick now or you die broke and sick a couple of years later… sigh. I probably […]

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I Shouldn’t Watch Medical Dramas

July 1, 2015
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So I was going through my medical files, my records from the old hospital that I’m sending to the new doctor to evaluate to see if she will take me into her service. While going through them, I found some diagnoses that no one had ever told me. One of those diagnoses turned out to […]

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Pop the Balloon

June 23, 2015
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One of the worst parts of CTEPH and CHF together is the swelling and fluid retention. The one single thing I can do that makes me feel better is to keep the fluid down. I do this by taking high-doses of diuretics and restricting my fluid t 1 1/2 to 2 liters of total fluid […]

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