So I checked into the hospital last night. Got here about 8pm. We brought sandwiches from Schlotzky’s with jalapeno kettle chips. Not my usual fare, but it’s what I wanted. I had to eat it quick, because they wouldn’t let me eat after midnight. I even had a lemonade. I like lemonade, but my homemade […]

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I have a doctor’s appointment tomorrow with a hematologist. I went to see him for the first time a few months ago, three years after I was diagnosed with CTEPH and massive PEs. When my best friend had PEs even less severe than mine, they had a hematologist come visit her in the hospital. I […]

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Since I’ve been sick, since I’ve been chronically ill, and then later, learning it was expected to be a terminal condition, I’ve had a lot of people say a lot of things to me. Some things, I don’t mind so much. They are meant well, and they are kind things from kind people. But there […]

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Today was worse than yesterday. My arms are going numb. My fingers won’t work like I tell them to. Typing is hard. I’m sick to my stomach from the pain. Took Zofran to help with the nausea. I can barely keep my eyes open from the pain pills making me sleepy and groggy. I wanted […]

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So day two of waking in pain, or is it day three? Who knows any more. The days run together when the pain is bad. At least this time, the pain is responding to the pain pills, but it takes several hours before they kick in enough to really function, and then they only last […]

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