One of the most difficult things about being immobile is that I have to depend on other people so much for what I need to do. I don’t know how I would live alone.
But one of the hardest parts of adjusting to a life of needing help is learning to wait for everything. I can’t do anything without help. If I want to go to bed, I have to wait until someone else can bring me my walker and set up the potty chair system. If I want something to eat, I have to ask someone else for it If I need to go to potty and the potty chair isn’t set up for me, I have to wait–needing to pee or otherwise–until someone sets things up.
I don’t mind waiting. I really don’t. But I hate having to ask for things and then sit there feeling useless and a nuisance at the same time.
This is probably one of the most difficult parts of disability for anyone, that feeling of not being able to be fully self-sufficient and having to depend on others for some of the simplest things.
